RARE News

RARE News

New research puts the spotlight on tube feeding

By admin

23 January 2024

RARE News

CureDuchenne Welcomes Patricia Brown as Senior Director of Community Engagement

By admin

23 January 2024

Rare insights

Rare Disease Summit, March 19-21 in Philadelphia, PA, United States

By admin

22 January 2024

RARE News

Project CASK Grant Program now accepting applications

By admin

18 January 2024

RARE News

International Kawasaki Disease Awareness Day: Special Podcast to Illuminate the Importance of Awareness

By admin

17 January 2024

RARE News

Benchmarking report published on “Early and Expanded Access Pathways in Ukraine, Poland, & the Baltic States”

By admin

10 January 2024

RARE News

UK charity PSPA raising awareness in news-style programme

By admin

10 January 2024

Industry Insights

UK report calls for more government input to make cell and gene therapies a true health system priority

By CONTRIBUTOR

9 January 2024

RARE News

IGA celebrates 30th anniversary in 2024

By admin

9 January 2024

Charity & advocacy

Davis Out of the Unknown: a family’s life with Koolen-de Vries Syndrome and their search for treatment

By CONTRIBUTOR

3 January 2024

RARE News

Sickle cell disease is not a joke

By admin

19 December 2023

RARE News

Sickle Cell Disease Association of America Inc. statement about gene therapy approval

By admin

15 December 2023

RARE Ramblings

Richard’s RARE Ramblings: Winter is coming… and I am ecstatic!

By CONTRIBUTOR

13 December 2023

RARE News

PSPA celebrates after receiving £164,000 National Lottery funding to help people living with PSP & CBD

By admin

13 December 2023

RARE News

Worthing couple take part in cooking challenge supported by celebrity chefs to raise funds for Muscular Dystrophy

By admin

8 December 2023

Science & tech

The Undiagnosed Diseases Network’s mission to eradicate the diagnostic odyssey: an interview with Sarah Marshall

By CONTRIBUTOR

6 December 2023

A day in the life

A day in the life: a medically complex condition that is as unpredictable as the weather

By CONTRIBUTOR

29 November 2023

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