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Turning the tide for rare disease
Turning the tide for rare disease
Bringing light into the world: the father running over 200 miles for Angelman Syndrome
By CONTRIBUTOR
16 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Andrea’s story
By ebishop
15 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Leading NF1 expert Professor Gareth Evans calls for earlier screening
By Becky Pender
15 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Caitriona Plunkett empowers young women with NF1 to prioritise breast health
By Becky Pender
15 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Sharon’s story
By ebishop
15 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Jodie’s story
By ebishop
15 October 2024
A day in the life
A day in the life of a PSPA helpline manager
By CONTRIBUTOR
14 October 2024
Turning the tide for rare disease
Research into diagnostic tests celebrated at international conference
By CONTRIBUTOR
9 October 2024
RARE News
Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome
By CONTRIBUTOR
9 October 2024
Patient voice
Understanding palliative care
By CONTRIBUTOR
9 October 2024
Patient voice
What is pain?
By CONTRIBUTOR
9 October 2024
Charity & advocacy
Join the movement: championing care for rare musculoskeletal conditions
By CONTRIBUTOR
9 October 2024
Science & tech
MendelScan—AI for good: informing patient and public perception
By editor
7 October 2024
Medical
Systemic mastocytosis: A new study reveals the perceptions and realities of this rare mast cell disorder
By CONTRIBUTOR
2 October 2024
Industry Insights
Putting patients first?
By CONTRIBUTOR
2 October 2024
RARE News
CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign
By admin
1 October 2024
RARE News
Sickle Cell Disease Association of America Inc. holds convention in Atlanta
By admin
1 October 2024
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