RARE Mitochondria: This issue really sets the stage to showcase the outstanding work happening in the field of mitochondria and how this is shaping the future for families affected by rare mitochondrial diseases

We are delighted to launch our newest edition—RARE Mitochondria, proudly supported by UCB. This edition is a deep dive into the landscape of mitochondrial research which has exploded in the last two decades.

Despite being a relatively new field of research, the last 20 years have seen exponential leaps forward in the understanding of the basic science of mitochondria and the identification of over 400 disease causing genes—and counting. Join us for this fascinating look into all things mito!

 

Featuring:

• RARE Inspiration featuring Linda Ramsey, the powerhouse volunteer who has dedicated the last quarter of a century to supporting mito families
• clinical spotlight—Professor David Thorburn, co-group leader, brain and mitochondrial research, Murdoch Children’s Research Institute, Melbourne, talks about building families through mitochondrial donation
• charity spotlight—The Lily Foundation, on their three pillars of patient and family advocacy
• thought leadership from industry, academia and advocacy, including UMDF,  IMP,  Cure Mito  MitoAction and more
• impactful stories from individuals and families affected by rare mito diseases sharing their lived experiences and highlighting the unmet needs yet to be addressed
• international news, art and reviews

You can view this publication from a desktop, laptop, mobile or tablet and it is packed with interactive links so you can enjoy the best possible experience when engaging with the content. And don’t forget you can also view from our website at any time along with lots of other great digital content.

www.rarerevolutionmagazine.com 

We hope you enjoy this edition, and look forward to hearing from you.

Thank you for supporting our RARE Revolution.
Together we are turning the tide for rare disease,


Warmest regards,

The RARE Rev Team
RARE Revolution Magazine

https://bit.ly/RARE-Mitochondria