Patient voice

Patient voice

Learning to thrive: living with congenital lymphangioma

By CONTRIBUTOR

14 March 2025

Industry Insights

Launching an early access programme: influencing factors

By CONTRIBUTOR

12 March 2025

Turning the tide for rare disease

The power of the patient voice in rare disease research

By Becky Pender

12 March 2025

RARE News

Butterfly mural symbolising rare endocrine condition unveiled at key Harrogate conference

By admin

11 March 2025

Rare insights

Living Rare in your twenties

By CONTRIBUTOR

10 March 2025

RARE News

CureDuchenne and Children’s Hospital of Orange County partner to bring world-class care to families with Duchenne muscular dystrophy

By admin

7 March 2025

Charity & advocacy

“Lil’ Brave One” from Serbia: Empowering scientific and patient networks in the field of rare neurotransmitter disorders

By CONTRIBUTOR

5 March 2025

RARE News

Unlock the future of pharma marketing: the 8th Annual Pharma Omnichannel Excellence Conference

By admin

5 March 2025

RARE News

Exposing the gaps in screening and care for hereditary brain aneurysms

By admin

3 March 2025

RARE News

SMA Europe announces the awardees and projects shortlisted through its call for research no.12

By admin

28 February 2025

RARE News

RARE DISEASE DAY 2025: Artistic expressions bring to life realities of rare conditions

By admin

27 February 2025

Patient voice

The invisible part of me: living with PBC

By Becky Pender

25 February 2025

Science & tech

The inflection era of healthcare: where technology, data, AI, and collaboration converge

By CONTRIBUTOR

24 February 2025

Turning the tide for rare disease

A personal and professional drive to advance research for rare disease

By admin

24 February 2025

Rare insights

The Gap in access to rare disease treatments for low-middle-income countries

By CONTRIBUTOR

20 February 2025

Rare insights

Patient-led research in rare diseases: How can we make this a reality?

By CONTRIBUTOR

20 February 2025

Science & tech

Enhancing clinical trial success through proactive patient advocacy and engagement

By CONTRIBUTOR

19 February 2025

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